Where in the World is Rebecca Today? » Healthcare

The Face of ObamaCare

Rebecca — Sun, 29 Jan 2012 12:42:19 +0000

This is MissM:

Lately, Miss M has been gaining attention all over the internet for this photo (even though she posted it months back). And every time I read some of the comments, I can’t help but jump in and talk about Miss M, because she is my friend.

When I call her my friend, I mean it. She is my friend. She is not an “internet friend” (though we did meet via a community on LiveJournal years ago!). Miss M and I have met-up on several occasions. I have been to her house, I have met her fiancé, and I have fussed at her kitties. My husband, mother, and one of my cousins have also met her. We call each other on the phone (thank you Skype!), we text (when it’s working), and we keep in touch via email, facebook, and twitter when we’re not commenting on each other’s blogs. I helped her start up PhoenixFunds, and I continue to support her and search for help for her. Therefore, when I comment and say “Miss M is a friend of mine”, I really do mean friend. And yes, I know what the M stands for. No, I’m not going to tell you. While Miss M appreciates all the support she is given, she does not want her full legal name out there on the internet, and I respect that.

As a long-time friend of Miss M, I know what she’s been through. She’s not kidding when she said she tried all other avenues for assistance.

But here’s the sucky part for her. It’s not over. Sure, she had her surgery in October, but the thing with major surgery is it takes ages to get over. Heck, I only had minor surgery on my armpit and it knocked me down for months afterwards. Miss M had major surgery and is looking at at least a year to a full recovery. On top of the months she already was ill. So by the time next October rolls around, she will have been out of work for a year and a half. And while she’s in recovery, she needs to see her doctors. Her insurance costs $250/month. This is on top of having to pay for the part of her surgery that wasn’t covered by the insurance. She owes around $10,000 for the surgery, and for her ER visit before she was able to gain insurance. She’s in a bit of a catch-22 — if she doesn’t pay $250/mo for her insurance, she has to start paying out of pocket to see the doctors. If she doesn’t pay back on the $10k, it goes into collections and puts her farther into debt making it impossible to afford the $250, and if she pays out of pocket to see the doctors, that adds even more to the $10k, never mind the fact that the doctor will want some of that money up front. And if she misses a month of paying $250, she goes right back to the beginning in terms of her deductible, which means shelling out $1000 up front before it starts to cover things.

And then you hear the “advice” – cut out Starbucks, drive a less expensive car, get rid of satellite TV, get rid of your iPhone, etc etc….but the thing is….Miss M doesn’t have or do any of those. She’s not a Starbucks junkie, her car is an older model (which means it needs to be repaired more frequently, which costs money…see? Catch-22), she doesn’t have satellite TV, and she doesn’t have an iPhone. She has an iPod touch that her fiancé gave to her several years ago because it was given to him at work as a Christmas gift, and he knew she wanted one. Her mobile phone is not snazzy, but she can’t get rid of it because since she drives an older car that is prone to breaking down, she needs to be able to call for help when she needs it (catch-22 again). And honestly? Cutting out a $30 bill isn’t going to magic $10,000.

I also know for a fact that Miss M participates in as many points sites as possible and earns points she can cash in for other things, like meals out, Amazon gift cards, her Disney pass, etc. Nothing that this woman does is done for the hell of it, and if she has any “disposable income”, well, I know it goes towards supplies for her business, food for her cats, or other necessities (you know, clothing, toiletries, food…).

It hurts me when people on other websites that have picked up her photo and story make nasty comments about her. I know I’m preaching to the choir here, because if you’re reading this entry, you are probably a friend and have probably read my other posts about Miss M, but if you’ve googled for more information about her, I hope you’ve stumbled upon this.

Ways to Help
I am NOT asking you to donate money to aid Miss M, but if you’re in the market for some jewellery, please visit her site or Etsy shop. Valentine’s Day is coming, and I can vouch that her pieces are stunning. I myself own a tree of life and snowman earrings, my mom has a custom bracelet, and my mother-in-law received a nestlace (bird’s nest pendant) that Miss M personalized with an un-heard of SEVEN birthstone pearls for her children and children-in-laws. I also have many one of a kind pieces Miss M has gifted to me over the years, including some lovely purple earrings I wear all the time and a red and gold beaded bookmark.

If you do want to donate, you can do so via both PayPal and GoFundMe.

Moving Forward (An Update on Miss M)

Rebecca — Mon, 19 Sep 2011 16:40:35 +0000

Miss M has had some great news recently. She was approved for a pre-existing condition insurance policy which will help her pay for the bulk of her surgery, AND she has finally been given the all-clear for surgery and will be going in on October 5. She will have a long recovery after this, and so she still will be unable to work for quite some time. Miss M also still has to pay off $600 before the surgery, as well as maintain her insurance premium ($250/month), try to make some headway on her previous hospital bill (while her insurance covers the pre-existing condition, it will not cover previous medical care), and well, be able to live for the next few months.

So, we’re asking for one last big push to help her get through the next few months. Please consider purchasing an item from her – handmade, one of a kind jewellery makes great holiday gifts – or making a donation. Also, if you could please pass on the links to her sites or my site, that would really be appreciated!

Her Website: http://giveneyestosee.com/blog

Blow-by-blow: http://giveneyestosee.com/blog/hysterectomy/

Donation Storefront: http://PhoenixFunds.etsy.com

Her Storefront: http://PhoenixFireDesigns.etsy.com

Her Website: http://www.phoenixfiredesigns.com

Direction Donations: http://tiny.cc/hysterectomy

http://www.gofundme.com/hysterectomy

Germs, Germs, Germs

Rebecca — Sat, 25 Jun 2011 22:14:00 +0000

After my post last week, we went away for the long weekend down to the South of England to visit Tim’s best mate, to go to Bath, and to spend a day in London. And of course, I came back with a cold. Last time we spent the long weekend with Nick, I came home with a cold. When we went to see BNL in Glasgow, I came home with a cold. When I went to visit J in Southamton, I came home with a cold. I even brought a cold back from our Austria trip. My music director commented on Thursday that I always seem to pick up colds easily and she wondered if I was okay. When I was living in the US (for 30 years of my life!) I think I had a cold maybe once or twice a year.

What changed?

Moving to another continent. No, seriously. Now, I’m not a scientist, so this is in the most basic terms, and probably horribly inaccurate, but — when you are born, you are practically immediately exposed to germs and bacteria. As you grow, you become immune to some of the germs that are local to you. And then you move. 30 years of immunity to NY/NJ/PA germs means NOTHING when it’s up against UK germs. Those UK germs will fight your immune system, and fight it hard. I know some ex-pat friends who told horror stories of spending their first few years constantly getting sick with colds. I thought they were exaggerating. Now I get it.

A friend of ours suggested that I start using local honey because he thought it might help me with building up an immunity to the pollen/germs/etc in Lincolnshire. And, I think it worked. The trouble is, I travel to other parts of the UK and then wind up with a cold or worse. Visiting the Southern part of England I even get digestive problems because the water is different than the water here.

So since Tuesday I have been battling this cold. I’ve gone through an entire box of tissues as well as 2 rolls of toilet paper with the constant nose blowing. I finally can breathe a bit, but my upper lip is rubbed raw from blowing my nose, and I still don’t have much of a voice. I’ve had to cancel on visiting Tim’s dad for Father’s Day and Tim’s grandad on his birthday because of this. I hope I get better soon!

Update on Miss M (or US Healthcare Sucks)

Rebecca — Wed, 15 Jun 2011 21:11:57 +0000

Here’s an update on my friend, Miss M. She’s received the bill from the hospital for her ER stay, and including a 40% non-insurance discount, the total for that bill is over US$8,000. This means Miss M now needs to raise over US$10,000 before she can even schedule her surgery. The goalpost just jumped by over 375% (Tim says about 384%). Again, this doesn’t include ANY of the fees/charges involved with her eventual surgery or interim OB/GYN visits.

[photo above © M. Turner]

I know you’re probably getting sick of seeing me post about this, but M is one of my nearest and dearest. I won’t beg for you to help her, but new items have been added to PhoenixFunds, including some photographs I have submitted. Please take a look at either Miss M’s shop, PhoenixFunds, or her direct website. Again, if you are a crafter or artist and would like to donate an item to be sold for Miss M’s benefit, please contact me in the comments..

Her Website: http://giveneyestosee.com/blog

Blow-by-blow: http://giveneyestosee.com/blog/hysterectomy/

Donation Storefront: http://PhoenixFunds.etsy.com

Her Storefront: http://PhoenixFireDesigns.etsy.com

Her Website: http://www.phoenixfiredesigns.com

Please pass these links along, re-tweet them, put them on Facebook, write a blog entry about Miss M, pass along my blog links…anything we can do to “boost the signal” and to help get M the help she needs. Especially if you’ve got any crafty friends because we are in need of crafty items!

Help Raise Money for Miss M’s Hysterectomy Fund! Donations Needed

Rebecca — Fri, 10 Jun 2011 11:01:52 +0000

I blogged about my friend, Miss M, last week. She’s had a few updates since then, and in her own words:

You can follow the progress of visits, current health, etc on my blog with my hysterectomy tag but this is just a summary of the situation. The full details can also be found here: http://giveneyestosee.com/blog/hysterectomy/

Memorial Day Weekend [Note to UK readers: US Memorial Day weekend is the same weekend as our bank holiday -R] I went into the ER after two days of non-stop severe pain. Many tests and an overnight stay later, it turns out that my uterus is full of tumors.I have multiple softball and multiple baseball sized fibroid tumors and equally large cysts. The total mass is approximately the size of a basketball.

I was on a fast-track for a hysterectomy when my OB/GYN discovered that it was worse then initially believed and I’m too high risk for surgery. High risk is 250 grams of tumors. I’m at over 1,200 grams. I am now on a shot to induce medical menopause in order to attempt to shrink the tumors prior to surgery. The larger the tumors, the more complicated and lengthy the surgery, the more time I will be under anaesthesia, the more complications and blood transfusions I will need. So we’re trying to get them shrunk at least half.

I work a part-time job that does NOT give me insurance. I also do NOT get paid for any time off period. So I’m already out two weeks of pay with many more to come. (When I do have surgery, I’ll be out 4 weeks in unpaid recovery as well.) I have already applied for and been denied financial and medical assistance by the state. I’m asking anyone who can help for your support as a result.

I need a total of $2,600 just to pay my OB/GYN, $1,400 of which must be up front before the surgery. This does NOT include the hospital, anaesthesiologist, radiology, etc. It also does NOT include the fees for the office visits and tests pre-op. (I’ve already spend $463 on those as of June 7th)

How can you help Miss M? Several ways –

First, you can make a direct donation to Miss M via this link: http://tiny.cc/hysterectomy. Link will take you directly to PayPal, the safest way to send money online. If you’d prefer, Miss M can provide her PO Box for a physical cheque.

Alternately, Miss M could use some help with her groceries while they are down to one income, and I’m sure gift cards for Wal-Mart or Target would be well appreciated! Or to Michaels, so Miss M could get more crafting supplies to make more things to sell. Miss M lives in Tampa, FL, so please check before sending other store gift cards to make sure she has one local.

Second, you can take a look at her Etsy shop, PhoenixFireDesigns, or her Website, PhoenixFireDesigns. Miss M makes beautiful jewellery, and like I said in a previous post, I have many items made by her including a Tree of Life necklace, a personalized Bird’s Nest necklace, snowman earrings, and several custom pieces. I always look at Miss M’s site first when I need a gift for someone!

Here is just a small selection of items Miss M has for offer:

[all images above are © PhoenixFireDesigns and used with permission]

Third, you can take a look at the items donated by her friends over on PhoenixFunds. Currently, there are some children’s items, chocolates, and accessories listed, with more being listed as they come in. I plan on donating some 8×10 photographs and a few pieces of jewellery this weekend.

Forth — If you are a crafter and would like to donate an item for sale in PhoenixFunds, please let me know in the comments. We are looking for anything handmade, as well as craft supplies and vintage items (basically, anything that can be sold on Etsy. This also includes patterns for things). You can either send your donated item directly to Miss M for listing, or email detailed photos/description of your item. If you choose to hold onto your item, you will be responsible for shipping the item when it sells. If you sell on Etsy or on an external website, Miss M would be more than happy to link back to your site as a thank you.

Fifth….Promote this. Please re-post this post or a version of this post, post the links to the shops, post a link to my post here or to Miss M’s blog at giveneyestosee. Miss M is also on LiveJournal, and can be found as memoryanddreamover there.

I have been friends with Miss M for years, and we have met in person several times. I have been to her house and met her partner and her kitties, so I can vouch that this is 100% legitimate. Miss M prefers not to use her real name online, however I assure you I do know her real name. Out of respect for Miss M, I will not refer to her as anyone other than Miss M on my blog.

Thank you for reading, and I hope you can help in some way!

Another Update on my Arm….

Rebecca — Tue, 05 Apr 2011 15:05:39 +0000

It’s not yet been a week since my surgery, but the nurse I see at the GP practice is amazed at how well it’s healing up. There’s barely any packing in it at all today, and she thinks that by the end of the week I’ll be able to just change the dressing on my own.

There is no sign of any infection either.

From the amount of packing pulled out last Thursday, and the results of my ultrasound, I know the infection ran really deep, so it’s quite a relief to have it all out. The fact that I’m healing super fast just goes to show how much better it was to finally cut out the infection instead of keep on shoving various antibiotics down my throat. I don’t blame the GP at all – I know surgery is always the last option, but when I had been dealing with this problem since December 2009….seems to me like surgery should have been obvious to the GP. But anyway. It’s happened and it’s gone, so that’s all that matters.

Since December 2009, when I first saw a doctor about this problem, here’s the breakdown of meds:

10 weeks of various antibiotics, each one getting stronger than the previous one
20 weeks on a combination antibiotic/steroid cream (used it every other week though, so I suppose only 10 weeks)
9 Months + on Zineryt (5 months to get rid of initial infections, currently using it to keep infections at bay)

I have an open office document about to spill onto it’s fifth page documenting everything related to the armpit infections, including every single visit to the nurse or GP. Since December 2009 I have had 16 GP appointments because of this problem and 30 nurse appointments (and counting). 4 visits to the After Hours GP, and one visit to A&E. It took the visit to A&E to get the problem sorted out once and for all (at least, we hope!).

If I get another infection in the other armpit, I think I’m going to just ask them for surgery right away. A week or two of recovering from surgery is so much better than constantly being on antibiotics and creams and having ugly colourful goo coming out of my armpits — I ruined MANY shirts in the past year and a half thanks to this mess!

Also, for those of you in the UK – don’t forget about prescription pre-payment. I just filled out the forms and paid for three months for £29 and with everything I had to pick up today I nearly broke even. (there’s also a yearly option for £104) It’s a good option if you have to pay for prescriptions and know you will be put on several at once.

Healthcare Costs

Rebecca — Mon, 04 Apr 2011 04:17:13 +0000

First, I should explain – The NHS is not free. We do not pay for GP visits, specialist visits, or hospital stays out of pocket, but we do pay for prescriptions (at least in England), eye exams, dental exams, and a few other things. Even with few out of pocket expenses, it still does not make healthcare in the UK free.

The NHS is funding through taxation, which is paid by most residents automatically through their employer via paycheck deductions (similar to SS contributions in the US). You need to be an “ordinary resident”* of the UK in order to access the NHS for “free”. Visitors are limited to not being charged for a visit to A&E (but you will get charged if you have to be admitted), treatment for communicable diseases, and family planning.

I was recently in hospital for three days (two nights) following a visit to A&E. Technically, I was admitted and discharged while I was sitting in A&E since I was finally sent home to sleep and come back. The following day, I reported to the EAU (Emergency Assessment Unit), which is a branch of A&E. I do not know if the five hours we spent in the EAU would count as an A&E visit or as part of my hospital admittance. I also had the following:

-IV drip of paracetamol (3)
-ultrasound
-blood tests, urine tests, MRSA test
-saline drip (3)
-”meal in a bag” drip (2)
-anaesthesia
-oxygen
-anti-nausea medicine
-paracetamol (16 doses of 2 pills)
-dihydrocodine (1 dose)
-”meals” – cups of tea, sandwiches, biscuits. (no hot meals)
-sponge bag kit (shampoo, soap, toothbrush, toothpaste, comb)
-surgery/abscess drainage (with dressing after)

To my knowledge, I saw 7 doctors, 3 junior doctors, 2 ward sisters, 1 nurse constantly (i was assigned to her), and about 12 other nurses sporadically, including the ones at my surgery.

And the only thing we had to pay out of pocket for was £10 for two days of use of the telly/phone/internet.

It’s absolutely shocking that once I started to google around for the “average cost of US hospital stay” I found astonishing figures….

-$85 for an IV
-$5 per pill of pain relief (Tylenol in the US, but is the equivalent to paracetamol)
-$150 just for the use of a bed
-$45 for a “wash bag”

And one site suggests that I might have been charged $16,000 for my three-day stay, based on their figures they posted for the average cost of a five-day stay. Of course, I would assume that if I was in the US, I would have had insurance to cover some of that, but I also know US insurance companies are shady and won’t agree to pay for certain things and will just make up the rules as they go along, so I can’t even begin to estimate what out of that $16k we might have had to pay.

Would I have had the surgery if we were living in the US and I didn’t have insurance? Probably not. I can still remember my ER bill from when I broke my foot in Michigan (and had no insurance). I was only in the ER for about 30 minutes because it was empty and had 2 x-rays done and I received a bill for $1000. I have relatives who with insurance received bills for hundreds of thousands of dollars. I know some people who would have just taken a pin or knife to the abscess and attempted to drain it themselves because of a lack of insurance…or even if they had insurance because insurance doesn’t cover everything.

I’d have to look at one of Tim’s paystubs to find out how much we contribute in taxes, and then I’d have to try to figure out how much of that goes to the NHS, so I won’t bother. But people who hate the idea of socialized medicine and think the US shouldn’t do it need to take a step back and look at the solid facts – a socialized healthcare system means that anyone who needs care will receive it when they need it. Yes, I was stuck waiting in a hospital for three days for my surgery because emergencies came in that took priority, but if this had been a life-threatening emergency, I’d have been at the top of the queue.

Websites I looked at while writing this post:
http://en.wikipedia.org/wiki/National_Health_Service_%28England%29
http://en.wikipedia.org/wiki/Acute_assessment_unit
http://www.wehct.nhs.uk/index/your_care/wards/emau.htm
http://www.dh.gov.uk/en/Healthcare/Entitlementsandcharges/OverseasVisitors/Browsable/DH_074374
http://www.cancercompass.com/message-board/message/all,5782,0.htm
http://www.georgiainjurylawyerblog.com/2010/03/outrageous_hospital_charges_ex.html
http://www.usatoday.com/money/industries/health/2004-04-13-rising-hospital-costs_x.htm

*“Ordinarily resident” is a common law concept interpreted by the House of Lords in 1982 as someone who is living lawfully in the United Kingdom voluntarily and for settled purposes as part of the regular order of their life for the time being, with an identifiable purpose for their residence here which has a sufficient degree of continuity to be properly described as settled. (http://www.dh.gov.uk/en/Healthcare/Entitlementsandcharges/OverseasVisitors/Browsable/DH_074374)

Addendum

Rebecca — Fri, 01 Apr 2011 11:39:41 +0000

[X-posted to blog, facebook, and lj. Again, apologies if you see this multiple times]

There were a few things I left out in my last post (Can you blame me? Typing at 4AM! LOL)

I wanted to add -

-Moving me to the ward where I’d be with “women my own age” was a bit of a joke. I was the youngest there. The woman across from me was the same age as my mom, the woman in the bed next to me the same age as my aunt, and the fourth woman was in her mid-80s. Monday we did little talking, but on Tuesday when 2 of the ladies were discharged, Sue (the one my mom’s age) and I became chatty so it was still a good move to move me, as the ward I had been on previously was full of all mid-80s women in various stages. The first ward also was very large and this one only had 4 beds in the room, so it was fairly quiet.

-As I said, the food I was given was awful. The biggest problem was, the NHS serves the hot meal at Lunch time, and since each day I was on “Nil by mouth” for Lunch, I had to skip it. The person serving the food always put aside whatever was cold from the meal for me to have when I was allowed to eat, but somehow the night nurse couldn’t find it so I was given those crap sandwiches. I can’t properly judge on the quality of the food, since I didn’t really eat NHS meals.

-The nursing staff….lovely. The daytime ward sister and Vicky were both amazing, as was the other nurse we had on Tuesday (Trina or something like that?). The night time ward sister also was amazing, but there was one night nurse who wasn’t very friendly OR encouraging. On Tuesday night when we were crossing our fingers that I’d still go, her only words to me were “you might not. There could be an emergency”, when all the other nurses were crossing their fingers along with me and telling me “I’m sure you’ll go”. I mean, way to be supportive of your patients! Not to mention, she kicked Tim out the one night before I knew if I was having surgery or not….something I found out later she wasn’t allowed to do as he is my spouse! Random visitors have to stick to visiting hours, but spouses are given all-access. Very annoying. But I loved Vicky. She really pulled out all the stops on me and really was hounding the surgery department to get me in or for them to make a decision. I plan on sending a letter of thanks to her and the hospital as soon as I can hold a pen again!

-Being able to be mobile, even while attached to an IV was great. I never once had to ask for a bedpan/commode, as I was able to always walk to the loo. On Wednesday, I was even allowed to take a shower to wash my hair (before being re-hooked to the IV). We dubbed my pole “Fred”. I haven’t been in a US hospital in years, but the last time I was in one (1998), the nurse forced me to use a bedpan even though I could walk.

-Wearing my own clothing was even better. The last time I was in a hospital in the US for a surgery (1998), I had to immediately change out of my clothing and put on a hospital gown. Here, I only had to wear the gown for the duration of my surgery. I was allowed to wear pajamas (or whatever I wanted, really) the entire time I was waiting, and about an hour after the surgery I was told I could change back out of the gown to be more comfortable. Nice. I also was able to keep my knickers (US: panties) on the entire time, including under my gown. When I was in hospital in the US, I was told I had to remove everything under the gown.

-I really can’t compare services received in the US vs. the UK. I never spent a night in a US hospital other than when I was born, and was a day patient 3 times (4 if you count the spinal tap). The only thing I CAN say is that I don’t think we’d have been able to afford a three-day stay in hospital if we lived in the US.

-As far as US Emergency Room vs UK Accidents & Emergencies go, I think the care was about the same. In the US, you’d have to wait if someone “worse” than you showed up just like you do in the UK. I was seen by triage about 45 minutes after arriving, and was called back to see a doctor about an hour after that. The long wait was only for a bed. In the US, I think the wait between triage and seeing a doctor might have been longer, but again, it always depends on the reason you are there. If you walk in and you are bleeding with something sticking out of you, I expect you’d get immediate care in both the UK and the US.

As far as an update on me goes -

I have a constant pain. The painkillers make it bearable, but it’s still always a dull pain. I found out yesterday from the nurse that I need to see a nurse every single day to have the dressing changed because they need to pack the incision. This really messes with our plans as it includes having the visiting nurses come see me over the weekend to change it on both days, and the visiting nurses cannot guarantee what time of day they will be able to come. During the week, I can easily get to my appointments if Tim has to work, as the practice is only a mile down the road. It’s walkable, or if I don’t want to walk, the bus costs 50p and goes from 3 houses down from me with a stop right opposite the practice.

Yesterday, I had extreme nausea after my nurse appointment. I will make mention of it to the nurse today, as I’m not sure if it was from the pain of being poked, finally coming down from the anaesthetic, or something else. I also might ask for a stronger pain reliever, but I DO NOT want morphine, which is what they almost gave me at the hospital. Thanks, but I don’t fancy being loopy for the next three weeks.

The Past few Days (or, My NHS Hospital Experience)

Rebecca — Thu, 31 Mar 2011 03:29:22 +0000

[x-posted to blog, lj, and facebook. Sorry if you see this more than once, and apologies for the length. I can use the "more" option on the blog directly, but I don't think it will cut any length for those of you reading it on an RSS reader.]

For some background -

I have Hidradenitis Suppurativa and was diagnosed in July 2010 after a year of misdiagnoses (2 in the US, 2 in the UK). Basically, what it means is that I have (very persistent!) infections in my armpit sweat glands. The disease hits females more than males (Though apparently men tend to get them more in their groin, women more in the armpits) and there really is no known cause or cure. There are loads of things that “might” trigger it, and loads of things that “might” cure it. Basically, I’m stuck with it until they decide to go away. Treatment (for me) has included loads of different antibiotic medications, a topical steroidal cream (at one point), and most recently, scrubbing with Hibiscrub and then applying Zineryt, a bacterial acne medication.

I have a file 4 pages long that describes my entire history with this problem, including all treatments. I won’t post it, but if you really are that curious, ask me to email it to you.

The Zineryt was doing it’s job, and while my armpit is scarred, the infections themselves were clearing up. And then I got a really bad case of flu that knocked me down for two weeks. At one point, I couldn’t get out of bed and skipped showering for three days. I was drenched in sweat several times each day…and a HS spot developed in my right armpit. (previously, everything was in left). I kept putting Zineryt on it, but on Wednesday or so of last week, I noticed a new spot developing – this one was about 2 inches long, and very narrow, but it hurt a lot. I called to make a regular appointment with my GP, but he was all booked up so I got an appointment to see one of the other GPs in the surgery. Told it was a HS flare up, and given a week of antibiotics with the instructions to come back in a week if it wasn’t healed or got worse.

Sunday evening, Tim put a cup of tea down for me and when I reached for it I had stabbing pain in my armpit, so bad I was sobbing from the pain. We rang up After Hours, and after a call back from a nurse, was told to report straight to A&E (US: ER). We arrived at A&E around 10PM.

By about 12AM, it was determined that I needed to have the wound drained, but they could not do it via a needle, it needed to be done by a surgeon. Waited until 3AM for a bed, and was told to come back in the “morning” for 8AM at the EAU (Emergency Assessment Unit) where they would have a bed for me. Was told “nil by mouth” as the plan was to do surgery in the AM.

Went home, got about 2 hours of sleep.

Reported to the AEU for 8. Saw a specialist around 11AM who said she wanted an ultrasound before ordering any surgery and I was brought food by the nurse (Yay!). But I sat in the waiting room for another hour and a half before they moved me to a bed in the AEU.

An hour later, they moved me again, this time to the Gynaecological unit. Er, let me just say how FRIGHTENING it is to be wheeled through Maternity and then into the Gynaecological unit when as far as you knew, everything was fine in that department and you knew you weren’t pregnant. Uhm…yeah. Turns out they were putting me there because it was an all-female ward, there was a bed free, and they thought I would rather be with “women my own age” over the older people in the EAU unit. I was put in an empty room with 4 beds. An hour after that, Tim went to ask a nurse if I could have some painkillers and eat again, and the nurse didn’t know I had been brought up!

Finally was told around 10PM that I was going to be spending the night, and a not-so-nice nurse kicked Tim out since “visiting hours were over” (though I understand that a) they let spouses stay longer and b) they let people stay if you’re waiting for surgery). Tears were shed, and I stayed awake until midnight to hear if I was having surgery or not. Was finally brought “dinner” around 1130PM when it was determined I wasn’t having surgery on Monday. Dinner consisted of a very skimpy cheese & pickle sarnie, a small scone (which resembled and tasted like a US biscuit), orange juice, and a pack of biscuits. But don’t get me started on the constant starving of me and the lack of receiving hot meals once I was given permission to eat.

Tuesday was a long day. BUT, I saw the surgeon three times. At one point I was told I was 4th on the list for surgery “barring an emergency”. Around 7PM, we saw 2 ambulances arrive at A&E, and I knew my chances were shot. Sure enough, a nurse came by and told me that they had to bump me again. OTOH, I got to eat a lot earlier after being starved since my “meal” at midnight. I did complain around 11AM that I was feeling dehydrated, so I was given IV fluids – 1L of regular saline, 1L of what I call “pickling juice”, as it contained the ingredients in brine, and then finally 1L of “food”. My only solid meal for the day consisted of another skimpy sandwich (this time egg mayonnaise (US: egg salad) as given to me by nighttime staff. The lady across from me gave me her spare banana, and Tim had brought me a sarnie, crisps (US: chips), and a chocolate bar. I ate the lot!

And then it was Wednesday. I was told the night before I could have water until 2AM, so assumed I’d be going first thing in the morning. Nope, never came. I was put back on 1L of saline. Suddenly, around 10, the porter came for me and said “you aren’t’ ready!” The woman in the bed opposite me (Sue, we became chatty with each other over the course of the few days) assisted me with getting into my gown so I wouldn’t have to wait for a nurse and I was wheeled away!

There was some confusion over what anaesthetic to give me because of my history of GERD. They finally made a decision and I went under. Poor Tim was on his way to the hospital for the day, so the nurse (Vicky, I loved her!) had Tim sit in the waiting room. I understand he was climbing the walls and pacing the whole time.

Surgery itself only took 10 minutes. I woke up in recover with only one sock on (how the heck did I lose a sock while completely knocked out?) and in serious, sharp, pain. At this point, it was a sting. The nurse thought it might be due to the cleansers they had used on my skin, or possibly the stuff they put inside the wound. I stayed in recovery for about an hour, where they gave me anti-nausea medication (just in case) and paracetamol (US: Tylenol) for the pain. Paracetamol didn’t help!

I was finally brought back up to the ward and Tim got to see that I was okay, but in pain. Vicky had me wait about 45 minutes before letting me have some water, and then another half hour later she let me have some food. Tim brought me a sausage roll (at my request), a proper sandwich, crisps, and a soda. The nurse brought me tea, toast, and biscuits. I was full up!

The nurse was finally given my prescription sheet….and they wanted me on morphine! Morphine would have required an additional day in hospital, and they were prescribing a HUGE dose, so she went back to them and told them no. Instead I was given Dihydrocodeine. Pain didn’t go away, but it was lessened, and I was released for home!

Since getting home I’ve slept sporadically – a quick cuddle with Tim on the sofa led to a half hour nap. Tim brought me some hot food (finally!) and we started watching Family Guy DVDs because I was still kind of dopey from the surgery and didn’t want anything I had to concentrate on. I fell fast asleep on Tim through an entire DVD of episodes (so, about 2 and a half hours) and we went upstairs.

I woke up around 330, and I’ve been composing this since as I came downstairs to take more medicine and decided to stay down until it kicked in again.

I know I have more to say, but this has taken up three pages in Open Office, so I’ll end this post now and get back to bed!

Once again, Thank you to EVERYONE who sent me well wishes via the various communication routes. I really appreciate it. I’m still not 100% and won’t be online a whole lot….even with the pain subsiding, I don’t want to go overboard and potentially slow the healing process by spending too much time typing, but maybe by Monday I will be back to a normal online appearance.

A Call to NHS Direct

Rebecca — Wed, 03 Nov 2010 11:47:35 +0000

Recently, my husband was ill. It started on a Friday, and we thought he hit the worst of it on Saturday, but by Monday, he was still feeling under the weather and he began to feel worse overnight on Tuesday. Scary worse. To the point where I wondered if I was going to need to wake my in-laws at 4AM to take us to A&E (I don’t drive).

I went online and filled out the NHS symptom checker. The online service told us that because he had been ill for more than 48 hours, medicine wouldn’t help at this point, and that a nurse would call us to evaluate the situation.

We got the call around 5AM and it was determined that Tim did not need A&E and shouldn’t go to the GP, either (due to spreading the illness). We were advised on what he should eat/drink and what kinds of medicines he could take. At 5 in the morning, when most people who are ill would probably think to head to the hospital if they were feeling as bad as Tim was.

We had to call back an hour later when Tim started showing other symptoms (we were told to call back if things changed). This is the point where if there wasn’t NHS Direct, I would have suggested A&E or After Hours. The nurse on the line, however, told us we didn’t need the hospital, which put my mind at ease.

According to the Telegraph, calls to NHS Direct cost £25.53, and a GP visit costs between £20-25. There are those who call for the closing of NHS Direct, sighting that it will save money. Sure, it just might save 53p-£5, BUT you need to then consider how many more people will be calling the after hours GP service or showing up at A&E. How much does an After hours visit or A&E visit cost the taxpayers? Probably a lot more than £25.53!

An article in the Guardian claims 1/3 of all calls to NHS Direct still result with a trip to A&E or the GP and this is a sign that NHS Direct doesn’t help….but what about that other 2/3 who get answers to their questions? If NHS Direct receives 27,000 calls on a daily basis (again, what the article claims), that means there are 18,000 LESS people each day crowding A&E, After Hours, and their GP office. Surely, you can’t scoff at that!

I don’t think the government should get rid of NHS Direct. The new plan, to create a “111″ information number won’t be as effective for one glaringly large reason: the operators answering the phone won’t be trained nurses. Plans are to give operators 6 hours of “anatomy” training and basic first aid, and then have ONE nurse on staff. I don’t like that. How will it be any better than someone going to Google and entering their symptoms and then finding a website that tells them they have something far worse than they actually do? When I put in my husband’s symptoms, the number one result was Swine Flu (which he didn’t have). If we hadn’t already spoken to a nurse directly, I probably would have been panicking! The second illness it kept telling me he had was Meningitis (again, he didn’t have that). Both are really scary and a LOT worse than what the nurse said. I can just picture calling into 111 and being told that you have a life-threatening illness when you really don’t. Something like that could cause further problems for someone just from panicking.

I sincerely hope the government decides against closing the NHS Direct number. If they’re worried about staffing issues, why not only have it open in the evenings,on weekends, and holidays? During the day, people could call their GP office if they had questions, but I think having NHS Direct is crucial for emergencies in the middle of the night.

News articles I mentioned:
http://www.telegraph.co.uk/health/3253245/Every-call-to-NHS-Direct-costs-25.html
http://www.guardian.co.uk/politics/2010/aug/27/nhs-direct-health-phone-service

NHS After Hours

Rebecca — Fri, 05 Mar 2010 22:30:54 +0000

I have had the misfortune to require a doctor after office hours twice this week. In the US, if I needed my doctor after office hours I would have to call into the answering service, leave a message, have my doctor (or the doctor on call) paged by the answering service, then wait for a phone call back from a nurse or secretary to tell me what to do (usually wait until the following day or head to the ER as those were the only options). Here in the UK, you call your regular GP number and if it’s after hours it will connect you automatically to the after hours operators. They will take down your information (I needed to provide my NHS number and tell them a bit about my problem plus give a phone number I could be reached at) and you’ll get a call back from a nurse a few minutes later. That nurse will ask you more questions (obviously, their first goal is to try to diagnose you over the phone and to make sure it’s not a true emergency). In my case, it was determined that I did not have a life-threatening emergency requiring A&E (Accidents & Emergencies, AKA the Emergency Room in the US), but that I did need to see an after hours doctor. Fortunately, we live only about 6 miles away from the county hospital that provides this service.

The after hours GP at the county hospital is located right next to A&E. For being after hours, it was surprisingly fairly empty both nights. The first night, there was one person waiting to be seen and 2 waiting for test results. The second night had a few more people, but it still barely made a dent in the waiting room seating areas!

The first night I went in, I saw a GP. He was able to access my NHS files to see what I was being seen for by my GP and what prescriptions I was on. After giving me an exam, he decided I needed to be put on more antibiotics and a heftier pain killer than regular paracetamol (closest US match: Tylenol/Acetaminophen ), so he wrote up a prescription and the nurse directed us to an “all night” pharmacy.

The pharmacy turned out to be the local Boots store we visit on occasion. They have a walk-up window instead of you actually going into the store so it was a little chilly while waiting!

But we were soon home and only spent £14.40 (the visit to the after hours was, of course, free and included in my NHS care).

The following day when I called, they did their best to reassure me and calm me down (I was having a problem related to the previous night), but in the end it was determined that I needed to see the Nurse Practitioner at the after hours just to be on the safe side. My visit with the nurse took 10 minutes or so, but it was enough to assure me that I was okay, and enough to assure the nurse that I wasn’t in any danger.

This is just one more reason in a long list of reasons why I really like the NHS and wish a similar system existed in the US.

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A Day Out

Rebecca — Tue, 23 Feb 2010 00:22:43 +0000

I took the bus into Lincoln today because I had a few errands I needed to run.

I got off the bus at the “top of the hill” near the Cathedral, as my original plans were to talk to the people at the pub we want to use for the reception in person, but that didn’t work out. As I was walking down Steep Hill (yes, it’s called that) I happened to spot a volunteer sign in the window of the Cancer Research charity shop. Since my application for OxFam must have been rejected (never heard back from them!), I was still looking for some place to volunteer, both as something to do, and as part of the new requirements for seeking citizenship in the UK. I walked in, asked about volunteering, and 10 minutes later I was “hired”. I’ll be working every Thursday from 1-5PM, which goes nicely with my other activity on Thursdays – an all-female Barbershop group (part of Sweet Adelines).

After landing the “job”, I went to Primark to replace some of the items I accidentally shrank in the wash* and then to Boots (drug store) to use some coupons that expired at the end of the month, and to place an order for photos to be printed to go with my insurance claim form. Then, it was the trek over to the other side of High Street to Argos to make a return. Right as I got to the barriers for the train, they went down, so I sent a text to Tim. He called and played “big brother” on me by looking at me through his CCTV! Item returned and new item purchased (I needed a new small crock pot), I walked back only to get to the crossing right as the barriers were going down again.

I met up with Tim and we went shopping for Mother’s Day cards and Birthday cards and then decided we’d just go look at eyeglass frames at one of the discount stores. I found frames for both regular and sunglasses that I liked (and they were only £70) and so we asked about making an appointment, and there happened to be an opening right then, so this afternoon I had an eye exam and got new glasses and sunglasses! I pick up the glasses on Thursday.

We also did our weekly run at Tesco, and now I’m busy (at midnight) finishing roasting a chicken so I can use it tomorrow in a stew I’m making for Tim’s grandad.

I just need to keep my eyes open for another half hour….

*Last week when I did the wash, I forgot that temperatures were in Celsius and I set it for 60…..60C is a hot water wash, not the lukewarm water wash I thought it was.

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One Month!

Rebecca — Sun, 21 Feb 2010 05:47:54 +0000

I’ve officially lived in the UK for one month, as of….well, right now, since my plane landed at 530 in the morning on the 21st of January. I’m settling into married life and life in the UK, and things are starting to get sorted –

*I’ve been added to Tim’s bank accounts and have received my debit card
*I have my NHS number and card and have been in to see the GP several times
*I have an EHIC card, so I’m covered if Tim and I jaunt into the rest of the EU and I need a doctor
*I have my NI number, so I can open savings accounts and get a job (if we decide I should)
*I have a library card, which has proven to be quite useful
*We joined the co-op and started earning a small bit for dividends
*I’ve been contacted by a local choir and have been invited to attend rehearsal this week

….the only thing left is for me to sort out the Provisional License, I think. As that requires sending off my passport for a month, I wanted to make sure I got everything else taken care of first.

It’s been a wild and crazy month, but I do love it here. I love being with Tim and we’re slowly getting the house sorted (and re-decorated) and everything is falling into place. We’ve even got most of the reception here planned already!

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My First Visit to the GP

Rebecca — Tue, 09 Feb 2010 08:52:54 +0000

Okay, I know it might sound funny for a 30-yr-old to write about her first trip to the doctor when she’s probably been going to see a doctor since she was born, but bear with me. Going to see a GP in the UK is a lot different than going to see the doctor in the US…and I don’t just mean because in the UK there is no co-pay!

My visit to the GP yesterday took all of 20 minutes. I got called back to the office at the exact time of my appointment, and the doctor was already waiting for me in his office. 20 minutes later, I was walking out with my new prescription in hand.

The health centre even has it’s own dispensary for prescriptions, and if they don’t have what you need, the co-op pharmacy is just one door over. We waited maybe 5 minutes for the prescription, and just like at the GP’s office, didn’t have to pay a co-pay to get it.

So, let’s talk about the NHS and using it as a spousal visa holder. Easy. All you have to do is walk into the GP office near your house and tell them you want to register as a new NHS patient. You fill out the new patient information for the GP, then THEY put your information into the computer, send it to the NHS, and about two weeks later your NHS number will be issued. You also are eligible for EHIC, which entitles you to free healthcare while travelling within the EU. At first, this looks like it involves filling out an application and sending in copies of your visa and waiting 21 days….but not if you’re on a spousal visa and are the spouse of a EU National. All your spouse has to do is call up EHIC and request a card for you. I should have my EHIC card in about 10 days.

There are other things that are different in the UK. For example, you don’t call the GP and set an appointment for way in the future. Most of the time, you’ll be asked about coming in later that day or the following day. The GP office also allows walk-in appointments (during set hours). The nurses at a GP office seem to have more responsibilities over nurses in a US doctor’s office in terms of what they handle for patients. The GP sees you in his office, not an exam room. I have to say, it’s a lot easier telling a doctor about your problems when you’re sitting in a friendly office setting and not perched on a cold table!

I was talking to the GP about Tim and I starting a family in 3-5 years and the first thing he did was offer me the implant birth control, which lasts for 3 years. He also told me that a woman isn’t high risk until age 40, and they usually do a natural birth unless something is really wrong or you are having a large baby. My US doctor had told me several years ago that if I wanted to have children, it would have had to be caesarian.

And did you know that if you throw up or have diarrhea within 3 hours of taking a pill, the medicine wasn’t absorbed by your body? I never knew this, and I’ve had digestive issues for several years now.

But the most astonishing part….it’s all free. No co-pays, no mysterious bills showing up in the mail later for tests you had in the office, no feeling like you need to take out a loan to afford your prescriptions…it’s all handled. Certainly makes you feel more comfortable about going in for preventative care!

Now, I won’t be stupid and claim that there aren’t any problems. Because of the free care the NHS offers, if you’re waiting for a non-emergency or non-essential surgery you might have a longer wait as they will schedule the emergencies first. And if you go to A&E (That’s Accidents & Emergency, known as the ER in the US), you’ll get seen based on the level of your emergency, not based on the order you arrived in, so if you go to A&E for something minor, expect a wait.

But I also know how good the NHS is. My father-in-law had a kidney transplant a few years ago, and Tim says he probably wouldn’t still be with us if it wasn’t for the NHS. When Tim’s gran went into the hospital, she was there for nearly 6 months and most of the time was just because she was too weak to be on her own. Tim’s family never saw a single bill. A 6 month stay in a US hospital can cost as much as half a million dollars.

I called my aunt last night to tell her about my doctor’s visit and she asked how much it cost. When I told her it was all covered by the NHS, her first response was “Why can’t we have something like that here [in the US]?”. I’d love to know.

Oh, and the GP gave me a prescription, but after I left he noticed it flagged in the system as something I wasn’t supposed to have, so he called over to the co-op to ask them to have me return to the office immediately. About 5 minutes after I arrived back at the GP, I was called back, given an apology, and walked out with a prescription I was allowed to have. I’m also going back over today to see someone about the arm infection my US doctor was trying to get rid of, and the GP doesn’t think I’ll need a skin graft like the US doctor did (of course, that might change based on today).

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British Crud

Rebecca — Thu, 04 Feb 2010 10:03:54 +0000

I’ve had Con Crud, and Cruise Crud, and the Canadian Death Cold…so I dub this, British Crud.

It started out with Tim having what I thought was a mild cold. He seemed to still be doing everything he needed to do, and went off to work each morning armed with packets of Lemsip (like Theraflu). He’s over it now, but he managed to pass it on to me….and boy, did he pass it on to me.

I’ve spent three of the past four nights sleeping down on the sofa because my sleeping patterns are so crazy. I’ll sleep for two hours, then be up for three, so I’ve been watching a lot of partial DVDs. I can barely breathe most of the time, so I’ve been wearing a breathe right strip on my nose whenever I’m indoors and using lots of Sudafed nasal spray (the only thing that clears my nose!). I coughed on and off, and I keep suffering from having an extremely dry mouth. Downing pint size glasses of Ribena every hour just to try to keep things from getting dry.

Everytime I think I might be “getting better”…something else hits. Today appears to be another day of needing to blow my nose every 15 minutes. Such joy.

In other news, Tim and I got out of the house yesterday and went to see Avatar. We both really liked it and I now see why it’s been winning awards. What I didn’t like was the snow/sleet that greeted us when we left the theatre. Yuck. Not what my cold needed. But I don’t think it made me any worse. By the time we got home, Tim just had enough time to eat dinner (soup in the crock pot) before heading out for his overnight shift.

And in some really good news – my visa debit card arrived for the bank account, so I don’t need to ask Tim for money if I need to go shopping. I also received the application (and sent it back) for my NI Number. Still no sign of the NHS card, but I need to wait until I kick this cold to go see the GP anyway.

So my life’s been a little boring lately, but I figured I’d post. I still also have previous trips that are begging to be written about, so hopefully I’ll find time to work on some of those as I’m feeling better.

[LJ readers reading this on the LJ RSS feed: Please click on the link at the top of the entry to go directly to my blog to leave a comment, as comments left on the LJ RSS do not get seen by me.]

A Visitor’s Guide to Getting Birth Control in the UK

Rebecca — Sat, 24 Jan 2009 13:28:44 +0000

It’s bound to happen to you – you’re traveling and didn’t calculate how much birth control you needed to bring with you, or you decide to extend your stay past the amount you’ve brought with you. The idea of making an overseas phone call to your doctor to get a prescription filled, then calling and begging a friend or relative to pick it up, pay for it, and ship it over to you just doesn’t sit well with you, either. So, what can you do, other than going off your birth control for a few weeks or months?

The UK-Yankee website and board is a fabulous place to start for information about anything regarding visiting/living in the UK as an American. Several of the ladies on the message board advised in the past that visitors have access to free birth control through the NHS. This some-what contradicts the big stamp in my passport that says “no recourse to public funds”, so I was a little skeptical.

I first researched family planning clinics in the area near Tim’s house. I found one in Grimsby that also had a website and e-mail address, and I contacted them with my questions. The woman who wrote back told me I would need to pay for the visit but the pills would be free, and gave me the number of a clinic closer to here. I didn’t call them.

Then, I did some more research online, and found the Marie Stopes organization. Marie Stopes provides birth control to low-income women throughout the world, and their main office is in London. I sent off an email inquiring if they had a location closer to here, and what the costs would be as a foreign visitor. Marie Stopes calculates their fees on a sliding scale (similar to Planned Parenthood), but did not tell me what fees would be charged to a foreign visitor. Unfortunately, their closest clinic to me was in Leeds, which isn’t all that close!

Several ladies on UKY mentioned Dr. Thom Dr Thom offers online birth control pill ordering – no exam or need to see a doctor. Dr. Thom charges £29.99 for a three-month supply. The only catch is that you have to already be on birth control and you must be on one of the pills Dr. Thom provides. Unfortunately, my brand of pill was not on the list. The only “American” brands I noticed were Yaz and Ortho-Tri-Cyclen. I emailed Dr. Thom and asked about ordering a similar pill, but was told they could not provide a pill I wasn’t already prescribed. Dr. Thom also requires the person placing the order to have a credit card in their name and a UK address associated with the card, so you would also need to add your UK address to your credit card before using their services.

It was beginning to become clear to me that I would need to try to see a doctor here, and I was a bit worried about the cost. There’s a family clinic (not family planning, just family clinic) in the next village over, so when Tim and I happened to be in that area, I stopped in with my old prescription.

I was told that if the dispensary supplied my brand, they would just give it to me, but since I was on a brand they were unfamiliar with, I needed to make an appointment to have a doctor give the prescription. I was told that as a visitor, I might need to pay £12 for the office visit, but they were not sure and would let me know when I had my appointment if that was alright with me. Well, £12 certainly didn’t seem like too much money to me, so I said that was fine.

My appointment took all of 10 minutes. The doctor weighed me, took my blood pressure, and asked me medical history questions. Then she looked up the chemical make-up of my pill and prescribed me a similar pill. I was expecting a month’s supply, but she prescribed me with a 3 month supply, and I was told to get it filled next door at the co-op. They did not mention paying a fee for the visit to me, but I assumed I would have to pay for my pills. I went next door, and to my surprise I was handed a 3-month pack of pills after a very short wait. I asked if I needed to pay for them, and was told no, they were covered under the NHS.

So, my advice to any of you ladies traveling to the UK who find yourself needing birth control (or the morning after pill, apparently), find a local family clinic or a family planning clinic…but don’t wait until the last minute. I started looking into things with 2 weeks left in my current pill pack, and by the time I saw the doctor and got a new prescription, I was less than a week away from running out!

For more information about what visitors are entitled to, please see: http://www.dh.gov.uk/en/Healthcare/Entitlementsandcharges/OverseasVisitors/Browsable/DH_074379

Where in the World is Rebecca Today? » Healthcare

The Face of ObamaCare

Moving Forward (An Update on Miss M)

Germs, Germs, Germs

Update on Miss M (or US Healthcare Sucks)

Help Raise Money for Miss M’s Hysterectomy Fund! ** Donations Needed **

Another Update on my Arm….

Healthcare Costs

Addendum

The Past few Days (or, My NHS Hospital Experience)

A Call to NHS Direct

NHS After Hours

A Day Out

One Month!

My First Visit to the GP

British Crud

A Visitor’s Guide to Getting Birth Control in the UK

Help Raise Money for Miss M’s Hysterectomy Fund! Donations Needed